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Provision and experience of care  


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This chapter addresses, in line with the domain of provision and experience of care of the parental well-being framework, the importance and current state of supporting access to high-quality and person-centred care. As pregnancy and childbirth represent a transitional life phase, the provision and experience of care received is essential for the family’s well-being. The subdomains describe the importance of access to respectful, intercultural, high-quality maternal and newborn care, and of the experience of that is care, in shaping well-being. Satisfaction with maternal health services is closely linked to respectful, culturally sensitive and high-quality care, which the framework emphasises as essential for maternal and newborn well-being (Le Lez et al., 2025).
Findings from the literature related to the provision and experiences of care emerged when discussing all other areas of well-being. In this subsection, we focus on factors that influence the utilisation of care and the impact of positive care experiences. In addition to mental health problems, minority groups and parents in challenging socioeconomic situations, parents with disabilities are also at risk of underutilising services, as pointed out in the chapters Culture and values, social inequalities and Disabilities challenge parental autonomy and increase the risk of underutilisation of perinatal services. The chapter Experiences during pregnancy and childbirth cause psychological stress and pose a risk to parental mental health presents further on the associations of pregnancy and birth-related experiences of care and their impact. 

Barriers to seeking help or receiving treatment

Socioeconomic factors and unequal use of perinatal services

According to McCarthy and colleagues (2021), women experience perinatal anxiety and stress due to poor healthcare experiences, including perceived low-quality care or a lack of access to services. Feijen-De Jong et al. (2011) found that a large number of other variables are associated with the late initiation or inadequate use of prenatal care. Even as independent factors, they form a picture of the inequities associated with access to healthcare during pregnancy and highlight the need to consider the needs of deprived women and the need for tailored interventions for them (Feijen-De Jong et al., 2011).
Weaker perinatal outcomes among women with a lower socioeconomic status may be linked to their lower utilisation of healthcare services (Grand-Guillaume-Perrenoud et al., 2022). Risk factors associated with non-utilisation of perinatal services appear to associate with women's socioeconomic status (low maternal age, low educational level, non-marital status, ethnic minority and living in a deprived neighbourhood) as well as reproductive health-related factors (planned place of delivery, high parity, prior premature birth, obstetric risk factors, late recognition of pregnancy) (Feijen-De Jong et al., 2011).
Family beliefs about mental illness, such as perception that emotional problems should stay within the family, and the presence of family may also prevent women from disclosing mental health symptoms (Bina et al., 2024; Webb et al., 2021). Women with mental health challenges can avoid seeking help due the fear of their children being removed from them or being judged in their motherhood or labelled for their issues (Watson et al., 2019). 

Stigma, fears and beliefs related to mental health as barriers to seeking help

When a parent experiences mental health challenges, several factors can create barriers to seeking help or delay access to services. These include fragmented service pathways, limited resources, negative attitudes toward mental health diagnoses, difficulties in recognising one’s own symptoms and concerns about how others may react (Newman et al., 2019; Smith et al., 2019).  Westgate, Manchan and Maxwell (2023) emphasised that mothers experiencing perinatal depression put their infant first when making decisions about their own health needs and treatment (Westgate et al., 2023). For mothers with obsessive–compulsive disorder (OCD), barriers to receiving help have included the healthcare system’s limited ability to recognise OCD and difficulties in using medication due to concerns about potential effects on the infant’s health (Burton et al., 2022).
More broadly, help-seeking is shaped by stigma, self-stigma, previous negative encounters with healthcare, fear of being judged or labelled, fear of being stigmatised and being seen as unfit mothers, fear of losing custody and beliefs that one should cope alone. A lack of knowledge about perinatal mental health, uncertainty about available services, practical challenges such as childcare or transportation and mistrust toward professionals all further hinder access to care (Bina et al., 2024; Jones, 2019). Similar experiences have also been reported among fathers, contributing to weaker preparation for fatherhood and, in turn, increased stress and reduced confidence in their parenting role (Venning et al., 2021; White & Jarvis, 2024).
Involvement in child protection processes – or even the fear of such involvement – can reduce parents’ willingness to engage with healthcare services. Parents report experiencing stigmatising attitudes from healthcare professionals and navigating fragmented service systems, which can lead to inadequate information sharing between agencies. For those already involved in child protection, past traumatic experiences may intensify the stress of the process, and the potential removal of a child can trigger earlier trauma. More broadly, negative perceptions of child protection services, particularly fears related to child removal, can erode trust in professionals and further reduce parents’ openness to sharing information (de Backer et al., 2024; Burrow et al., 2024; Burton et al., 2022).

Barriers to services faced by minorities

Barriers to seeking help have particularly been recognised among people with immigrant backgrounds (e.g., Firth et al., 2022), as well as among LGTBQ minorities (Kirubarajan et al., 2022). Immigrants face various challenges related to the quality and availability of services in a new country (e.g., Dela Cruz et al., 2023). Asylum seekers and refugee women are likely to face more barriers to seeking help than the general population, exacerbating inequality in healthcare (Firth et al., 2022).
Despite the identified risk factors, women with immigrant backgrounds often receive perinatal care later than recommended and they also have poorer access to health services (Almeida et al., 2013; Saunders et al., 2023). An unfamiliar and fragmented healthcare system, negative interaction experiences and communication difficulties with healthcare professionals, and culturally unsensitive services weaken the possibility for sufficient support and successful interaction (Fair et al., 2020; Kasper et al., 2022; Pangas et al., 2019; Watson et al., 2019). Language barriers can affect women’s health literacy and prevent potentially informed choice and consent for healthcare (Fair et al., 2020). Aiyar et al. (2023) identified regional differences in obstetric outcomes, and refugee and asylum‑seeking women have reported both a lack of interpreter support and cultural incompatibility in perinatal care. Immigrant fathers have similarly described cultural challenges and mismatches in services (Vo et al., 2024), which can reduce the overall quality of care (da Conceição et al., 2015). Some men also reported feelings of shame related to attending appointments, being present during childbirth and participating in infant care when these roles were not considered culturally normative (Aiyar et al., 2023).
Attitudes and stigma related to mental health, together with limited information on mental health, may prevent individuals with immigrant backgrounds from seeking help and reduce their possibilities of receiving sufficient support (Almeida et al., 2024; Firth et al., 2022; Heer et al., 2024; Watson et al., 2019). According to Firth et al. (2022), in addition to a limited understanding of the concept of depression, parents’ belief in self‑care and the contradictory advice received from healthcare providers and family members can hinder help‑seeking for perinatal depression. Mental health problems such as depression may also be culturally unacceptable, as they can be perceived as a sign of weakness or as something that prevents women from fulfilling their expected roles in society. These perceptions can contribute to emotional isolation, feelings of being misunderstood and even separation from family and a lack of social support (Watson et al., 2019). The cultural background also shapes parents’ preferences and beliefs, including their expectations regarding the need for medical care during the perinatal period (Fair et al., 2020).

Disabilities and parenthood

Women with intellectual disabilities report limited decision-making power in perinatal services, a lack of information about pregnancy, difficulties understanding information, feelings of unsuitability for motherhood and fears of child removal. These challenges may contribute to disengagement from care (Homeyard et al., 2016). There is also a need to explore interventions that best support parenting skills for parents with intellectual disabilities (Coren et al., 2018). Mothers with physical disabilities or functional limitations report more severe depressive symptoms than persons without disabilities. The association between physical disability and postpartum depression is robust (Pingeton & Goodman, 2025).
Maternal disability is a risk factor for underutilisation of perinatal services, especially when additional challenges such as intimate partner violence exist. Physical barriers such as mobility challenges and inadequate accessibility, along with financial constraints, create external obstacles. Insufficient staff training on recognising domestic abuse and ensuring accessibility limits comprehensive support for parents with disabilities. Psychological factors, including stigma and the perception of pregnancy as ‘high-risk’, further reduce women’s perceived need to seek care (Breckenridge et al., 2014).

Professional expertise and shortcomings in the service structure

Professionals’ limited knowledge, skills and confidence in addressing paternal perinatal mental health reduce the acceptability of assessments and create concerns about causing offense, managing safety and balancing both parents’ needs. Professionals highlighted gaps in training, a lack of clear guidelines and the absence of standardised tools or referral pathways as major barriers. Introducing routine screening and structured approaches was seen as essential to normalise paternal mental health support and improve inclusion (Darwin et al., 2021).
Mothers with depression value individualised, culturally sensitive care and emotional validation, which is frequently lacking in current services. Peer support and accessible treatment models are essential to reduce isolation and meet women’s specific needs. They emphasised the importance of having their role as a mother validated and understood, as this helped normalise their experiences. Breastfeeding was identified as a significant source of stress, leading to a clear need for targeted support in this area (Westgate et al., 2023).
Fathers often respond positively when included in screening, reporting little distress and expressing appreciation for being acknowledged. Organisational culture and service remit strongly influenced attitudes toward fathers’ mental health. Services were largely mother-focused, with routines and communication directed at mothers, and some professionals not viewing fathers as equal caregivers. Limited contact opportunities, time pressures and workload constraints further hindered engagement and screening. Fathers often perceived maternity and child health services as primarily for women, preferring to discuss mental health with general practitioners (Darwin et al., 2021).
Due to cultural differences, expectations and practices related to maternal health care may not match between women and professionals. It is essential to recognise that the needs of immigrant women extend well beyond pregnancy. Increasing trauma awareness, cultural sensitivity and stronger interpretation services have been identified as an important area for development in perinatal services for parents with immigrant backgrounds (Fair et al., 2020). Pangas et al. (2019) studied experiences of maternity care among refugee women and observed that continuity, culturally appropriate care and healthcare relationships played an important role in the positive experiences of women. The attitudes of healthcare providers impact on women’s access to perinatal mental health support (Watson et al., 2019).

Impact of positive experiences with care

Positively experienced care during the perinatal period has been identified as a significant protective factor leading to better psychosocial well-being among mothers. Ways to remove barriers to seeking help and strengthen support in perinatal services were identified in the literature.  

The importance of positive care experiences

Strong systems and positive environments foster positive interactions between women and healthcare providers (Miyauchi et al., 2022). Person- and family-centred services that take into account the needs of all family members were associated with increased trust, commitment and continuity of care (Billings et al., 2024; Van den Ber, 2020). Such approaches support help-seeking and promote resilience, and they may reduce delays in care and social isolation when parents are experiencing mental illness (Burton et al., 2022; Harries et al., 2023; Ramsauer & Achtergar, 2018). Psychoeducation and community-based support further increase awareness and facilitate access to help, especially when a lack of information may prevent adequate support (Firth et al., 2022). It is essential that professionals can respond to women’s needs in an open, non-judgmental and genuinely motivated manner. Care should be grounded in a trusting relationship between women and healthcare professionals, delivered flexibly and continuously, and organised in a patient-centred way. In addition, women should have genuine opportunities to choose between different treatment options offered to them (Webb et al., 2021).

Positive treatment experiences protect mental health

Positive treatment experiences strengthen trust and protect mental health (Bell et al., 2016). Good communication and the opportunity to participate in care decisions in childbirth increase parental well-being and protect against depression (Bell & Andersson, 2016; Silva-Fernandez et al., 2023). Empathetic communication and postpartum support reduce the risk of PTSD and support both parents (Shorey & Chan, 2020). In addition, fathers' involvement and positive experiences of care have been shown to reinforce the beneficial psychological effects of parenthood (Arnold et al., 2025; Palioura et al., 2023).
Literature addressing the capacity of healthcare services to support patients in challenging situations consistently highlights the importance of patient-centred and sensitive care. Van den Berg and colleagues (2018) reported that following miscarriage, parents have reported that they valued patient-centred health care highly. They hoped to be recognised as individuals undergoing a significant life event, rather than being treated solely as a medical case. Sensitive, empathetic and emotionally validating care has been shown to support parents after stillbirth and the loss of a child (Peters et al., 2015). Empathetic grief support and opportunities for creating memories in the context of loss can prevent long-term trauma and facilitate recovery (Westby et al., 2021), while emotionally validating care similarly helps parents following miscarriage and child loss (Peters et al., 2015).
Trauma-informed care has been associated with prevention of PTSD and negative birth experiences (Ayers et al., 2016; Givrad et al., 2025, Watson et al., 2019). It also supports continuity of care and prevents fragmentation (Newman et al., 2019). A high-quality therapeutic relationship and continuity supports parents with a history of trauma, ACEs and PTSD (Atzl et al., 2019; Chamberlain et al., 2019). A trusting relationship with healthcare staff increases feelings of security and helps parents with prior adverse experiences to cope with challenging situations (Chamberlain et al., 2019).

Considering the diversity of families

Accessible services and appropriate staff training ensure that parents with mobility limitations or other special needs receive the support they need (Breckenridge et al., 2014). In addition, father-friendly services and peer support reduce feelings of exclusion and support the well-being of the whole family (Baldwin et al., 2018; Shorey & Chan, 2020). Equitable and sensitive perinatal services for sexual and gender minorities reduce stress and marginalisation (Kirubarajan et al., 2022).
The literature on perinatal care among refugee and immigrant families further underscores the importance of continuity, cultural sensitivity and relational aspects of care. In a study on refugee women’s experiences of maternity care, continuity, culturally appropriate care and supportive relationships with healthcare professionals were central to positive care experiences (Pangas et al., 2019). The accessibility and sensitivity of perinatal services are thus key to ensuring equality and inclusion. Culturally sensitive care and adequate access to information help prevent inequities and strengthen inclusion, particularly among families with an immigrant background (Fair et al., 2020; Kasper et al., 2022). Such approaches also prevent treatment discontinuation and strengthen trust in services (Pangas et al., 2020).
Culturally sensitive practices and increased knowledge of mental health can reduce stigma-related barriers to care (Almeida et al., 2024; Firth et al., 2022). Empathetic and non-judgmental care protects dignity and reduces stigma-related barriers to help-seeking, including fears related to child removal or detention (Almeida et al., 2024; Bina et al., 2024; Watson et al., 2019). Improving accessibility, providing interpreter services and ensuring cultural compatibility have been shown to facilitate access to care for immigrant families and refugees (Almeida et al., 2013; Saunders et al., 2023). Interpretation services and the use of plain-language materials support informed decision-making and reduce misunderstandings (Fair et al., 2020; Homeyard et al., 2016). Clear communication and confidential, trustworthy services are particularly important in contexts of legal uncertainty, such as the asylum process (Balaam et al., 2022).

Key observations from Nordic expert discussions concerning the provision and experiences of care domain

Experts identified gaps in the service system, such as fragmented care pathways and documentation, as well as a lack of evidence and substantial training needs, particularly when parents are experiencing mental health issues. Expert discussions highlighted the critical need to harmonise and clarify care pathways in situations where a parent in the family has mental health challenges and/or social risk factors. Addressing these challenges in policy and service design is central to ensuring accessible, accurate information and maintaining confidence in health and social care systems. Strengthening and ensuring universal services was seen as a prerequisite for addressing broader system gaps. Despite individual risk factors being identified, there are still no validated models for assessing cumulative family risk which perpetuate reactive rather than preventive service structures. The complex needs of families with cumulative risk factors may not be fully addressed by some interventions, which may be too general or insufficiently intensive.
Regional inequalities and culture- or language-specific needs require greater attention, and culturally sensitive services that utilize interpretation must be integrated into all relevant settings. Minority and diverse families should be taken into account when developing services and assessing their suitability.
Parents are feeling increasingly overwhelmed by the demands of parenting and the current insecurity surrounding families. Anxiety levels among highly educated mothers are rising. Misinformation, information overload and declining trust among young people pose emerging societal risks and may lead to a higher level of polarisation. New guidelines, such as those on-screen time usage in families, require effective implementation. High daycare attendance rates emphasise the need to invest in quality early childhood education and to recognise this as both a risk and a protective factor.
Nordic experts also identified many implementation barriers for:
  • A lack of specialised perinatal teams and mother–baby units and long waiting times for secondary services exacerbate the situation.
  • Service discontinuities early in pregnancy. Experts recognised that services are often interrupted at the beginning of pregnancy when existing programs, such as substance abuse services and adult psychiatry, withdraw, citing a lack of expertise.
  • Weak integration and coordination between professional teams and services.
  • Inconsistent documentation, undermining the continuity of care.
  • The lack of a tiered care model that would guide the placement of interventions from promotion to prevention and treatment.  
  • Variation in guideline implementation for preventive programs and guidelines.
  • Limited assessment of the partner’s mental health. Assessing a partner's mental health remains at the recommendation level, even though research evidence of bidirectional effects is growing. 
  • Under-use of evidence‑based interventions such as iCBT or CBT and structured peer support.
  • Limited evaluation of intervention effectiveness in the Nordic context.
  • The absence of national, unified training programmes to cover all professionals in care and support pathways.